SUPPORT SISTER NETWORK (HGSSN)
Do you want to be part of our HG Sister Support Network ( HGSSN)? We are looking for some spots to fill . We are seeking volunteers on having knowledge in many areas and its important to know and everyone has their "niche" some examples are:
•Feeding tubes •IV care
•Breastfeeding • IVF •Preeclampsia
Caretaker to someone with HG •Having HG more than once.
Zofran pumps
Home Health Care and more.
If you feel you can do this, submit your information to us .
What we are looking for help currently is updated often.*
HELP with social media
•HELP with Facebook Groups moderators
Social Media Manager/ Fresh PR team
•YouTube Content and editing
• Book and organizing
•Crisis Support chatrooms to help moms in need
•Research on what's trending
•Research on topics to present at medical conferences
ASK YOURSELF THIS IF YOUR UNSURE IF YOI WANT TO HELP OTHERS WITH HG
•Do you want to help women not be scared or alone like you were during HG? ✅
•Do you feel passionate about this, and you want to make a difference? ✅
Do you want to give back to HG moms and help to educate the medical community? ✅
Do you want to help share our content, make new content and be a face for our campaigns and organization? ✅
We are the faces of HG no matter what aspect of HG your in. They all matter and it's important to know all aspects matter , we can and you're not alone .
The before, during and the aftermath of HG.
HG FACTS
•The Aftermath can last the rest of your life
1 in 3 babies don't make it to a live birth
The dark side of pregnancy is very twisted and we need you to know you are never alone .
If you said YES to these,
Then you are the HG Activist we are looking for. Please reach out to us , it will change your life.
Please email us at starrhgactivist@gmail.com
Text Us or Call 909-261-1111
We work closely with the HER FOUNDATION to help you get the best care possible. Please reach out if you have any questions. Your not alone
Your support and contributions will enable us to meet our goals and improve our organization needs for mothers, fathers and their families. The money that comes out of our own pocket , because we don't want anyone to suffer like we did.
We do this , to make sure no one falls in the cracks . Donations are a Godgreatly send to us at HGBDATA.
ALL DONATES HELP US KEEP OUR WEBSITE UP, CRISIS SUPPORT , TREATMENT PLANS, SPEAKING AT MEDICAL CONFERENCES , TO BRIDGE THE GAP WITH DOCTORS AND PATIENTS.
HGBDATA we handle a high demand of mothers in need. Your generous of your donation, 50 cents to $5.00 dollars, 500.00 will fund our mission and goals to save moms all over the world. . We focus on all 3 aspect of HG. We are a non-profit volunteer based
organization all donations go right back into our organization to keeping our Crisis support available 24/7. We will help mothers with Care plans tailored to them. We help by educating women and their families, doctors and set up ongoing support. All donations help us to maintain our website, email and 24 hour crisis line. Your contributions help us collaborate with the medical community. at medical conferences, and hospitals
HG can turn deadly fast, therefore; early intervention and aggressive care is essential for mothers and babies. 1 out of 3 babies do not make it to a live birth. So it is vital for mom and baby to get the proper care, medications, IV hydration and nutrition in all 3 aspects of HG.
Malnourishment in HG mothers and dehydration can be deadly. It can leave an ever lasting damage to the mother and children born to HG moms.
Recovery for a mother with HG may not happen as many think.
It can take a very long time to recover from Hyperemesis Gravidarum (HG) in the aftermath . According to the HER Foundation it takes an average of 4-6 months a day for each day they were sick . It may take a few years , if the mothers illness was severe or prolonged. Some women will have residual issues long-term, sometimes with vague or atypical immune or gastrointestinal symptoms that are difficult to resolve. Some women will never recovery and their health will continue to deteriorate. HG Activist Starr Andrews Strong fights this battle daily.. She broke the stigma on the aftermath of HG so all women who have HG that has have nausea/and or vomiting into late pregnancy usually find it takes months to regain their energy and restore their nutritional reserves. Food aversions may persist and take months or even years. To feel better . Some women may never recover from it and will always have aversions. HER states it will often take 1-2 months of recovery for every month she was malnourished or debilitated by HG. Additional complications during pregnancy should be re-evaluated postpartum by a primary care doctor to ensure complete recovery.
IMPORTANT FOR FAMILIES TO KNOW: Families need to be aware of common postpartum issues and their symptoms to ensure women get the care they need. A mother’s health greatly impacts the development of her child(ren)amils need to be aware of common postpartum issues and their symptoms to ensure women get the care they need. A mother’s health greatly impacts the development of her and baby.
is to help women and their families in all three aspects of HG. WHY? Because all 3 aspects of HG matter . Are you a mother who needs support or help finding resources, information, support or if you need help to fight for your care, we are here for you. To help you try again, to help with care during and in the aftermath.
We have volunteers all over the world that can help you at this most difficult time of your life. As well as resources for family members who wish to learn more about HG.
If your husband or boyfriend, partner need help we have men who can give that support and understanding.
To ensure that you receive the best possible care for you and your baby, our team will stay in contact with you during the entire duration of your pregnancy and postpartum. It is very important to receive good medical care during an HG pregnancy. Complications to mother and baby can arise if severe HG knows as Hyperemesis Gravidarum, NVP, nausea and/or vomiting is not controlled. Since HG is not very common and most doctors believe that HG is just "acute morning sickness or "just" severe morning sickness that will go away' we will fight with you until you get the proper care you need. Our crisis line you may call or text 24/7.
When you have HG and get poor care, you are left confused, alone and isolated. You're left with all these questions, of anger and resentment, confusion and slam back to reality.
You're handed this baby and you're expected to snap your fingers and be the old you . Your family, your doctors expect you to be fine .
"That's not the way it works in real life". You see this women in the mirror and wonder what the Hell happened? I don't know this person the shell other outside nor in. You want ýour old life back, thè old YPU! SHE GONE FOREVER AND HAVING TO EXCEPT
HG can affect you in many ways. Long term, short term and that can emotionally, mentally and physically, destroys your self worth. Your body your teeth rotting away , your hair falling out , vomiting , pain , brain issues, still having nausea and vomiting and so much more send you into the rabbit hole of depression. You hate your body and yourself . You see this women who just overcame the biggest battle of HG can mentally destroy your thoughts, feelings and push you to the brink of insanity.
HG can destroy you physically, in many ways. HG can destroy families, friendships, your bank account you're body, marriage, motherhood so much more . We are here for you, if you need help please find us on social or text or call us
This is not a full list of aftermath health issues
Mast cells are cells that play an important role in your immune system, telling your body when to respond to things that shouldn’t be there. When the immune system doesn’t work correctly MCs can cause problems in your body and reck having on you.. MCs can be involved in allergies, nerve problems, and connective tissue disorders
MCAS, mast cell mediators are released too frequently or abundantly, and/or in response to triggers that are not typically considered to be harmful, to most people but to the person with it can be deadly.
Specific triggers and symptoms of MCAS vary greatly between individuals, and additional trigger
For example: foodstuffs, chemicals in the environment. Inappropriately triggered inflammation among individuals with MCAS leads to a wide range of symptoms that affect multiple systems in the body.
include fragrances, exercise, stress, and changes in temperature. MCAS symptoms can be episodic (come and go) and may often change over time within the same person. This can make it difficult for people with MCAS to identify their specific triggers, and the number of triggers and severity of symptoms may continue to increase as the condition progresses.
People with MCAS are at an increased risk of suffering Anaphylaxis after encountering a trigger. Anaphylaxis is a potentially life-threatening allergic reaction that affects multiple bodily systems.
☆Anaphylaxis has a rapid onset of symptoms and it is important to be aware of the ABC signs:☆
Airways: look for a persistent cough, swollen tongue or lips, and difficulty swallowing.
Breathing: look for difficulty breathing and wheezing.
Circulation/Consciousness: look for reduced blood pressure, confusion, and collapsing.
Visit
dysautonomia — a disorder of the autonomic nervous system. This branch of the nervous system regulates functions we don't consciously control, such as heart rate, blood pressure, sweating and body temperature.
Gastroparesis is a condition that affects the normal spontaneous movement of the muscles (motility) in your stomach. Ordinarily, strong muscular contractions propel food through your digestive tract. But if you have gastroparesis, your stomach's motility is slowed down or doesn't work at all, preventing your stomach from emptying properly. Gastroparesis is a condition that affects the normal spontaneous movement of the muscles (motility) in your stomOrdinarily, strong muscular contractions propel food through your digestive tract. But having HG destroyed this . Especially when your vomiting all the time . It's common to have Gastroparesis with CVS, Cyclical Vomiting Syndrome.
Starr presented on this you can find her DOI HERE https://www.omicsonline.org/proceedings/hyperemesis-gravidarum-and-cyclic-vomiting-syndrome-a-patient-s-perspective-51493.html and the presentation on youtube
Fibromyalgia Widespread muscle pain and tenderness all over your body. Every part of your body hurts . Someone could just touch u and it's painful and still fe a like they are still touching you.
FM causes pain all over your body to the point you feel like a big rig hit you and you're body flew in the air and landed on railroad tracks AND survived it only to be hit by a train . You fly from impact and land in the street only to be hit by a tour bus.
THAT A SMALL GLIPZE OF FM.
Pain areas: in the muscles, abdomen, back, or neck
Pain types: can be chronic, diffuse, sharp, or severe
Pain circumstances: can occur at night
Whole body: fatigue, feeling tired, or malaise
Muscular: muscle tenderness, delayed onset muscle soreness, or muscle spasms
Gastrointestinal: constipation, nausea, or passing excessive amounts of gas
Mood: anxiety, mood swings, or nervousness
Cognitive: forgetfulness or lack of concentration
Hand: sensation of coldness or tingling
Sensory: pins and needles or sensitivity to pain
Sleep: difficulty falling asleep or sleep disturbances
Also common: depression, flare, headache, irritability, joint stiffness, painful menstruation, sensitivity to cold, or tingling feet
How Do I Decide to Get Pregnant Again After Having Hyperemesis Gravidarum ?
How to survive during HG
You need a support system . If you are planning to have another baby, it's important to prep your self ahead of time .
You can find Starr Andrews Strong HGactivist on YouTube vlogging the aftermath
Quick answer is yes! Will update with more soon